Language Concordance In Genetic Counseling: Counselor Training, Education, And Requirements
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Carolina Conti
CoPIs:
Laurie Simone
College:
The College of Health Professions and Human Services
Major:
Genetic Counseling
Faculty Research Advisor(s):
Laura Limone
Abstract:
Individuals with limited English proficiency (LEP) face challenges communicating effectively with healthcare professionals in the United States, contributing to existing healthcare access and outcome disparities for this population. Communication entirely in the patient's preferred language without an interpreter, known as language concordance, has been shown to positively impact patient communication and helps achieve in-session genetic counseling goals. Although research supports that language concordance should be encouraged and aided in graduate programs and continuing education opportunities in the genetic counseling field, there is a gap in research on the educational and personal experiences of multilingual genetic counselors and the support provided in this area. This mixed-method study aims to fill this gap by shedding light on the training, support, and resources available to multilingual genetic counselors practicing in the US who conduct language-concordant sessions. A total of 13 multilingual genetic counselors participated in the study, revealing that the vast majority obtained limited formal training and education specific to genetic counseling in languages other than English, with little to no support or resources in a language other than English. This study underscores the need for comprehensive training, education, and support mechanisms for multilingual genetic counselors throughout their careers in various educational and professional settings. Participants in this study endorsed the development of official practice-based guidelines and requirements for genetic counselors who wish to conduct language-concordant genetic counseling sessions.